Journal
JOURNAL OF GERONTOLOGICAL SOCIAL WORK
Volume 54, Issue 1, Pages 92-115Publisher
ROUTLEDGE JOURNALS, TAYLOR & FRANCIS LTD
DOI: 10.1080/01634372.2010.534547
Keywords
death; dying; bereavement; family caregiving; perceptions
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Funding
- John A. Hartford Foundation
- National Institute on Aging (NIA) [2T32AG000272-06A2]
- McGrath-Morris fellowship
- NATIONAL INSTITUTE ON AGING [T32AG000272] Funding Source: NIH RePORTER
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This study examined the perceptions of preparedness and support of informal caregivers of hospice oncology patients. Respondents included coresiding, proximate, and long-distance caregivers. Thematic analysis was used to analyze the qualitative data from 2 caregiver surveys, one administered prior to the care recipient's death and another completed 3 months postdeath. Respondents (N = 69) interpreted preparedness broadly and identified multiple sources of support including hospice personnel, family, friends, neighbors, and spiritual beliefs. Additionally, informational support, such as education, information, and enhanced communication were considered essential for preparing and supporting caregivers. Implications for social work research and practice are provided.
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