4.4 Article

Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya

Related references

Note: Only part of the references are listed.
Editorial Material Ethics

Community Members Employed on Research Projects Face Crucial, Often Under-Recognized, Ethical Dilemmas

Sassy Molyneux et al.

AMERICAN JOURNAL OF BIOETHICS (2010)

Article Public, Environmental & Occupational Health

Distinguishing research from clinical care in cancer genetics: Theoretical justifications and practical strategies

Nina Hallowell et al.

SOCIAL SCIENCE & MEDICINE (2009)

Editorial Material Medicine, General & Internal

Ethical Data Release in Genome-Wide Association Studies in Developing Countries

Michael Parker et al.

PLOS MEDICINE (2009)

Article Development Studies

CONDUCTING HEALTH-RELATED SOCIAL SCIENCE RESEARCH IN LOW INCOME SETTINGS: ETHICAL DILEMMAS FACED IN KENYA AND SOUTH AFRICA

Catherine Molyneux et al.

JOURNAL OF INTERNATIONAL DEVELOPMENT (2009)

Article Multidisciplinary Sciences

A global network for investigating the genomic epidemiology of malaria

Dominic Kwiatkowski

NATURE (2008)

Review Genetics & Heredity

Science and society - From genetic privacy to open consent

Jeantine E. Lunshof et al.

NATURE REVIEWS GENETICS (2008)

Review Public, Environmental & Occupational Health

Interventions to improve risk communication in clinical genetics: Systematic review

A. Edwards et al.

PATIENT EDUCATION AND COUNSELING (2008)

Article Public, Environmental & Occupational Health

Ethics and the ethnography of medical research in Africa

Sassy Molyneux et al.

SOCIAL SCIENCE & MEDICINE (2008)

Article Public, Environmental & Occupational Health

Taking social relationships seriously: Lessons learned from the informed consent practices of a vaccine trial on the Kenyan Coast

Caroline Gikonyo et al.

SOCIAL SCIENCE & MEDICINE (2008)

Article Health Care Sciences & Services

The role of community-based organizations in household ability to pay for health care in Kilifi District, Kenya

Catherine Molyneux et al.

HEALTH POLICY AND PLANNING (2007)

Article Medicine, General & Internal

Effectiveness of Haemophilus influenzae type b conjugate vaccine introduction into routine childhood immunization in Kenya

Karen D. Cowgill et al.

JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION (2006)

Article Public, Environmental & Occupational Health

Data sharing and intellectual property in a genomic epidemiology network: policies for large-scale research collaboration

Dave A. Chokshi et al.

BULLETIN OF THE WORLD HEALTH ORGANIZATION (2006)

Article Ethics

The Complexities of Ethical Evaluation of Genomics Research

R. Hoedemaekers et al.

HEC FORUM (2006)

Article Public, Environmental & Occupational Health

Trust and informed consent: insights from community members on the, Kenyan coast

CS Molyneux et al.

SOCIAL SCIENCE & MEDICINE (2005)

Article Immunology

Sickle cell trait and the risk of Plasmodium falciparum malaria and other childhood diseases

TN Williams et al.

JOURNAL OF INFECTIOUS DISEASES (2005)

Article Public, Environmental & Occupational Health

Ethical goals of community consultation in research

N Dickert et al.

AMERICAN JOURNAL OF PUBLIC HEALTH (2005)

Article Public, Environmental & Occupational Health

Understanding of informed consent in a low-income setting: three case studies from the Kenyan coast

CS Molyneux et al.

SOCIAL SCIENCE & MEDICINE (2004)

Article Public, Environmental & Occupational Health

Protecting human subjects: the role of community advisory boards

SC Quinn

AMERICAN JOURNAL OF PUBLIC HEALTH (2004)

Review Genetics & Heredity

Protecting communities in pharmacogenetic and pharmacogenomic research

C Weijer et al.

PHARMACOGENOMICS JOURNAL (2004)

Article Multidisciplinary Sciences

Genomics and global health: Time for a reappraisal

DJ Weatherall

SCIENCE (2003)

Article Communication

Beyond public perceptions of gene technology: community participation in public policy in Australia

H Dietrich et al.

PUBLIC UNDERSTANDING OF SCIENCE (2003)

Article Public, Environmental & Occupational Health

The role of community advisory boards: Involving communities in the informed consent process

RP Strauss et al.

AMERICAN JOURNAL OF PUBLIC HEALTH (2001)

Article Medicine, General & Internal

Ethical challenges in community-based research

PA Marshall et al.

AMERICAN JOURNAL OF THE MEDICAL SCIENCES (2001)

Review Multidisciplinary Sciences

Searching for genetic determinants in the new millennium

NJ Risch

NATURE (2000)

Article Ethics

Public deliberation and private choice in genetics and reproduction

M Parker

JOURNAL OF MEDICAL ETHICS (2000)

Article Ethics

Involving study populations in the review of genetic research

RR Sharp et al.

JOURNAL OF LAW MEDICINE & ETHICS (2000)