4.5 Article

The Nordic data imaginary

Journal

BIG DATA & SOCIETY
Volume 7, Issue 1, Pages -

Publisher

SAGE PUBLICATIONS INC
DOI: 10.1177/2053951720907107

Keywords

Big data; health data; health policy; platform economy; Nordic data gold mine; data imaginary; sustainability

Funding

  1. European Research Council (ERC) under the European Union's Horizon 2020 research and innovation programme [682110]
  2. Kone Foundation
  3. Academy of Finland [292408]

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The Nordic countries aim to have a unique place within the European and global health data economy. They have extensive nationally maintained and centralized health data records, as well as numerous biobanks where data from individuals can be connected based on personal identification numbers. Much of this phenomenon can be attributed to the emergence and development of the Nordic welfare state, where Nordic countries sought to systematically collect large amounts of population data to guide decision making and improve the health and living conditions of the population. Recently, however, the so-called Nordic gold mine of data is being re-imagined in a wholly other context, where data and its ever-increasing logic of accumulation is seen as a driver for economic growth and private business development. This article explores the development of policies and strategies for health data economy in Denmark and Finland. We ask how nation states try to adjust and benefit from new pressures and opportunities to utilize their data resources in data markets. This raises questions of social sustainability in terms of states being producers, providers, and consumers of data. The data imaginaries related to emerging health data markets also provide insight into how a broad range of different data sources, ranging from hospital records and pharmacy prescriptions to biobank sample data, are brought together to enable full-scale utilization of health and welfare data.

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