4.7 Article

How do AD patients and their caregivers decide whether to enroll in a clinical trial?

Journal

NEUROLOGY
Volume 56, Issue 6, Pages 789-792

Publisher

LIPPINCOTT WILLIAMS & WILKINS
DOI: 10.1212/WNL.56.6.789

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Funding

  1. NIA NIH HHS [K01 AG-00931] Funding Source: Medline

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To examine how patients and caregivers decide whether to enroll in a clinical trial, the authors conducted semi-structured interviews with 22 family caregivers of patients with mild to moderate AD who were recruited for a clinical trial. They found that a caregiver who enrolls a patient in research generally involves the patient in the decision-making process, reports that the patient shares in the decision, and regards the risks and benefits to the patient and to the caregiver as interdependent.

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