Journal
AMERICAN JOURNAL OF THE MEDICAL SCIENCES
Volume 322, Issue 5, Pages 241-245Publisher
ELSEVIER SCIENCE INC
DOI: 10.1097/00000441-200111000-00001
Keywords
population-based research; community research; informed consent; stereotyping; multicultural
Categories
Funding
- NHGRI NIH HHS [R01-HG02207-01] Funding Source: Medline
- NHGRI NIH HHS [R01-HG02207-01/HG/NH] Funding Source: Medline
Ask authors/readers for more resources
Investigators in population-based studies confront unique ethical challenges due to the community context of their research, their methods of inquiry, and the implications of their findings for social groups. Issues surrounding requirements for informed consent, the protection of privacy and confidentiality, and relationships between investigators and participants take on greater complexity and have significance beyond the individual research subject. In this paper, ethical challenges associated with community-based epidemiological research are briefly examined. We argue that ethically responsible population-based studies must seriously consider community needs and priorities and that researchers should work collaboratively with,local populations to implement study goals. Strategies that promote respect for populations in community-based studies are outlined. These include community participation in research development, implementation and interpretation; adequate provision of information about study objectives to community members; and systematic feedback of study results.
Authors
I am an author on this paper
Click your name to claim this paper and add it to your profile.
Reviews
Recommended
No Data Available