Journal
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION
Volume 91, Issue 9, Pages S72-S76Publisher
W B SAUNDERS CO-ELSEVIER INC
DOI: 10.1016/j.apmr.2009.11.031
Keywords
Patient participation; Psychometrics; Quality of life; Rehabilitation
Categories
Funding
- National Institute on Disability and Rehabilitation Research, Office of Special Education and Rehabilitative Services, U.S. Department of Education, through a Rehabilitation Research and Training Center on Measuring Rehabilitation [H133B040032]
- Mount Sinai Spinal Cord Injury Model System [H133N060027]
- New York Traumatic Brain Injury Model System [H133A070033]
- Rehabilitation Research and Training Center on Traumatic Brain Injury Interventions [H133B040033]
- United States Department of Veterans Affairs Rehabilitation Research and Development Service
- Health Services Research and Development Service
- Elsevier BV
- Paralyzed Veterans of America
- Ontario Neurotrauma Foundation
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This article summarizes the recommendations made by participants at the International Symposium on Measurement of Participation in Rehabilitation Research. We draw on presentations by researchers, clinicians, and consumers; a respondent panel; and small group discussions that included symposium faculty and participants. Breakout groups discussion questions focused on several key issues: What do we know about defining and measuring participation? What don't we know? What are the research barriers to defining and measuring participation? What are the research priorities to resolve these obstacles and develop better instruments? What are the organizations and opportunities to continue the work of this symposium? What are the major aspects of participation that should be measured? With what kinds of participation constructs do item response theory methods and clinimetric and other psychometric approaches fit? Do people form types of participants that can be categorized? Which person characteristics should be considered when evaluating differential item functioning? What cultural and physical features should be considered in measuring participation? What legacy measures could be used as an item pool to tap participation? Can a crosswalk unite legacy participation measures? Reporters summarized the subgroups' discussions, and then the larger group focused on shared concerns, which are summarized here.
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