Journal
ADVANCES IN CHRONIC KIDNEY DISEASE
Volume 13, Issue 2, Pages 178-182Publisher
W B SAUNDERS CO-ELSEVIER INC
DOI: 10.1053/j.ackd.2006.01.003
Keywords
genetic testing; direct-to-consumer; genetic privacy; genetic discrimination; professional guidelines; provider education; government regulation
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Genetic testing is expanding rapidly to become part of mainstream medicine. While genetic tests bring with them the promise of improved diagnosis and treatment for patients, they also raise several policy challenges. These challenges include the lack of a coherent oversight system to ensure the quality of tests and testing laboratories, the rise of direct-to-consumer genetic testing, the dearth of professional guidelines to assist the transition of genetic tests from research to medical practice, and the absence of federal legislation to protect the privacy of genetic information and prevent genetic discrimination. (c) 2006 by the National Kidney Foundation, Inc.
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