Journal
JOURNAL OF DEVELOPMENTAL AND BEHAVIORAL PEDIATRICS
Volume 27, Issue 3, Pages 249-277Publisher
LIPPINCOTT WILLIAMS & WILKINS
DOI: 10.1097/00004703-200606000-00012
Keywords
spina bifida; family interventions; adaptive family functioning
Funding
- NICHD NIH HHS [R01 HD048629] Funding Source: Medline
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Research on the adjustment of families of children with spina bifida is reviewed, with a focus on delineating the impact of spina bifida on family functioning, the strengths and weaknesses of past research, and the needs for future evidence-based research on family interventions with this population. PsychINFO and MEDLINE literature searches were used to identify studies of family functioning and family-based interventions for children with spina bifida. Identified studies were empirically evaluated for the presence or absence of key methodological or analytic criteria. Thirty-two studies of family functioning were identified from 25 separate research groups; most studies displayed significant methodological limitations. No published studies of interventions to promote adaptive family functioning were identified. Methodologically sound, longitudinal, and theory-driven studies of family functioning are needed, as are randomized family-based intervention trials to promote adaptive functioning and better psychosocial outcomes in families of children with spina bifida. Specific recommendations for future work as well as clinical implications are noted.
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