Journal
JOURNAL OF PEDIATRIC PSYCHOLOGY
Volume 31, Issue 8, Pages 846-858Publisher
OXFORD UNIV PRESS INC
DOI: 10.1093/jpepsy/jsj096
Keywords
barriers; knowledge; patient-provider communication; pulmonary; treatment
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Funding
- AHRQ HHS [F31 HS011768] Funding Source: Medline
- NHLBI NIH HHS [HL69736] Funding Source: Medline
- PHS HHS [F31-H511768-01] Funding Source: Medline
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Objectives The purpose of this study was to systematically identify barriers to treatment adherence for children with cystic fibrosis (CF) and asthma, as well as to examine the relationship between the number of barriers and adherence. Methods Participants included 73 children with CF or asthma and their parents. The mean age of the sample was 9.9 years, and 58% were males. Results Results indicated that barriers were quite similar by illness and informant (e.g., parent and child) for the same treatments, but unique barriers were identified for disease-specific treatments. Frequently mentioned barriers across diseases included forgetting, oppositional behaviors, and difficulties with time management. Trends were identified between adherence and barriers, suggesting that a greater number of barriers were related to poorer adherence. Conclusion Overall, this study provided evidence that patients and their parents experience specific barriers within the context of their own illness and highlights the need for disease-specific measures and interventions.
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