Longitudinal changes in family outcomes of very low birth weight

Objectives. Although children with very low birth weight (VLBW, < 1500 g) are at high risk for developmental impairments, we know little about the long-term effects of VLBW on families. This study examined long-term family outcomes and their stability over time. Methods. Participants were the families of 64 children with < 750 g birth weight, 54 with 750 - 1499 g birth weight, and 66 term-born controls. Family burden and parental distress were assessed annually as part of longitudinal follow-up of the children from mean ages 11 - 14 years. Results. Family burden and parental distress were higher in the < 750 g group than in the term-born group, but differences varied with the child's age and family environment. Conclusions. The findings document long-term effects of VLBW on families that are moderated by the degree of low birth weight, child's age, and family environment.