Journal
JOURNAL OF AGING STUDIES
Volume 21, Issue 3, Pages 239-254Publisher
ELSEVIER SCIENCE INC
DOI: 10.1016/j.jaging.2006.12.001
Keywords
parents; unpaid carers; complex communication needs; cerebral palsy; aging; hospitalization; developmental disability
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In this study eight parents aged over 60 years participated in in-depth interviews about their experiences in supporting an adult son or daughter with cerebral palsy and complex communication needs (CCN) in hospital. A narrative analysis of the interviews provided insights into the nature of the parent carer's experiences in hospital. The results are presented as an interpretation of the participants' perceptions of their roles in hospital and the impact of these upon their health and wellbeing in older age. The participants' suggestions of how to improve the hospital care experience for all concerned are included and directions for future research are discussed. (C) 2007 Elsevier Inc. All rights reserved.
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