Journal
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
Volume 34, Issue 5, Pages 539-546Publisher
ELSEVIER SCIENCE INC
DOI: 10.1016/j.jpainsymman.2006.12.016
Keywords
caregivers; intervention studies; suffering; stress
Funding
- NCATS NIH HHS [UL1 TR000005] Funding Source: Medline
- NHLBI NIH HHS [HL076858, HL076852, R24 HL076852, R24 HL076858, R24 HL076852-029001] Funding Source: Medline
- NIA NIH HHS [AG20677, U01 AG013305-05, P01 AG020677, AG13305, U01 AG013305, AG024827, AG19180, P30 AG024827, K08 AG019180, R01 AG015321, AG015321] Funding Source: Medline
- NIMHD NIH HHS [P60 MD000207-019001, P60 MD000207, MD000207] Funding Source: Medline
- NIMH NIH HHS [K23 MH074963, MH071944, P30 MH071944, 1 K23 MH074963-01, K23 MH074963-02] Funding Source: Medline
- NINR NIH HHS [NR08272, R01 NR008272, R01 NR008272-01] Funding Source: Medline
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Family caregivers are integral to the care of Patients with physical or menial impairments. Unfortunately, providing this care is often detrimental to the caregivers' health. As a result, in the last decade, there has been a proliferation of interventions designed to improve caregivers' well-being. Interventions for caregivers of persons at end of life, however, are relatively few in number and are often underdeveloped. They also are typically designed to help reduce the work of caregiving or to help caregivers cope with the physical and emotional demands of providing care. Although useful, these interventions generally ignore a primary stressor for family caregivers-a loved one's suffering. Patient suffering, whether physical, psychosocial, or spiritual, has a major impact on family caregivers. However, interventions that focus on the relief of patient suffering as a way to improve caregiver well-being have rarely been tested. It is our view that more research in this area could lead to new and more effective interventions for family caregivers of seriously or terminally ill patients. In support of our view, we will define suffering and review the relationships between patient suffering and caregiver well-being. We will then discuss a conceptual framework for intervention design. Finally, we conclude with a discussion of implications and future directions for intervention research.
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