Journal
AMERICAN JOURNAL OF PUBLIC HEALTH
Volume 104, Issue 2, Pages E16-E31Publisher
AMER PUBLIC HEALTH ASSOC INC
DOI: 10.2105/AJPH.2013.301706
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Funding
- National Center for Research Resources, National Institutes of Health (NIH) [U54RR022762]
- National Institute for Minority Health Disparities, NIH [U54MD007598, U54RR026138]
- National Center for Advancing Translational Sciences, NIH [UL1TR000124]
- National Cancer Institute, NIH [3U54CA153499-04S1]
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To assess the experienced or perceived barriers and facilitators to health research participation for major US racial/ethnic minority populations, we conducted a systematic review of qualitative and quantitative studies from a search on PubMed and Web of Science from January 2000 to December 2011. With 44 articles included in the review, we found distinct and shared barriers and facilitators. Despite different expressions of mistrust, all groups represented in these studies were willing to participate for altruistic reasons embedded in cultural and community priorities. Greater comparative understanding of barriers and facilitators to racial/ethnic minorities' research participation can improve population-specific recruitment and retention strategies and could better inform future large-scale prospective quantitative and in-depth ethnographic studies.
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