Journal
AMERICAN JOURNAL OF CRITICAL CARE
Volume 18, Issue 5, Pages 418-426Publisher
AMER ASSOC CRITICAL CARE NURSES
DOI: 10.4037/ajcc2009473
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Funding
- National Human Genome Research Institute at the National Institutes of Health [R25 HG01516]
- Division of Nursing, Health Resources and Services Administration
- NATIONAL HUMAN GENOME RESEARCH INSTITUTE [R25HG001516] Funding Source: NIH RePORTER
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Surrogate decision makers may be poorly prepared to give informed consent for genomics research for their loved ones in intensive care. A review of the challenges and strategies associated with obtaining surrogates' consent for genomics research in intensive care patients revealed that few well-controlled studies have been done on this topic. Yet, a major theme in the literature is the role of health care professionals in guiding surrogates through the informed consent process rather than simply witnessing a signature. Informed consent requires explicit strategies to approach potential surrogates effectively, educate them, and ensure that informed consent has been attained. (American Journal of Critical Care. 2009; 18: 418-427)
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