Journal
AMERICAN JOURNAL OF BIOETHICS
Volume 8, Issue 11, Pages 36-43Publisher
ROUTLEDGE JOURNALS, TAYLOR & FRANCIS LTD
DOI: 10.1080/15265160802513093
Keywords
Results; biobank; engagement; genetics; public opinion; focus groups; cohort study
Funding
- National Human Genome Research Institute [UG1HG004206]
- NATIONAL HUMAN GENOME RESEARCH INSTITUTE [U01HG004206] Funding Source: NIH RePORTER
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The National Institutes of Health and other federal health agencies are considering establishing a national biobank to study the roles of genes and environment in human health. A preliminary public engagement study was conducted to assess public attitudes and concerns about the proposed biobank, including the expectations for return of individual research results. A total of 141 adults of different ages, incomes, genders, ethnicities, and races participated in 16 focus groups in six locations across the country. Focus group participants voiced a strong desire to be able to access individual research results. Recognizing the wide range of possible research results from a large cohort study, they repeatedly and spontaneously suggested that cohort study participants be given ongoing choices as to which results they received.
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