Journal
JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY
Volume 36, Issue 2, Pages 118-126Publisher
ROUTLEDGE JOURNALS, TAYLOR & FRANCIS LTD
DOI: 10.1080/13668250.2011.570253
Keywords
Down syndrome; morbidity; healthcare; health surveillance; guidelines; case record study
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Background Medical problems are described in a population of persons with Down syndrome. Health surveillance is compared to the recommendations of national guidelines. Method Case records from the specialised and primary healthcare and disability services were analysed. Results A wide spectrum of age-specific medical and surgical problems was described. Congenital heart defects and middle ear infections were mostly experienced by younger people, while thyroid disease, epilepsy, and Alzheimer's disease were frequent among older people. Psychiatric disorders and behavioural problems were frequent in all age groups. Conclusions Health surveillance remained insufficient, despite the guidelines available. A joint effort by healthcare and disability service providers is required to ensure that the medical needs of people with Down syndrome are adequately met across their entire lifespan. An active provision of healthcare and monitoring for this vulnerable group is needed.
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