The cost of mental and physical health disability in childhood and adolescence to families in the UK: findings from a repeated cross-sectional survey using propensity score matching

Objective In the UK, families of disabled children are entitled to receive disability benefits to help meet costs associated with caring for their child. Evidence of actual costs incurred is scant, especially for mental health disability. In this study, we aimed to quantify the cost of mental and physical health disability in childhood and adolescence to families in the UK using the concept of compensating variation (CV). Design Repeated cross-sectional survey. Setting The UK general population Participants 85 212 children drawn from 8 waves of the Family Resources Survey. Outcomes Using propensity score matching we matched families with a disabled child to similar families without a disabled child and calculated the extra income the former require to achieve the same living standards as the latter, that is, their CV. We calculated the additional costs specifically associated with several definitions of mental health and physical health disability. Results Families of a child with any mental health disability, regardless of the presence of physical health comorbidity, needed an additional 49.31 pound (95% CI: 21.95 to 76.67) and, for more severe disabilities, an additional 57.56 pound (95% CI: 17.69 to 97.44) per week to achieve the same living standards of families without a disabled child. This difference was greater for more deprived families, who needed between 59.28 pound (95% CI: 41.38 to 77.18) and 81.26 pound (95% CI: 53.35 to 109.38) more per week depending on the extent of mental health disability. Families of children with physical health disabilities, with or without mental health disabilities, required an additional 35.86 pound (95% CI: 13.77 to 57.96) per week, with economically deprived families requiring an extra 42.18 pound (95% CI: 26.38 to 57.97) per week. Conclusions Mental and physical health disabilities among children and adolescents were associated with high additional costs for the family, especially for those from deprived economic backgrounds. Means testing could help achieve a more equitable redistribution of disability benefit.