4.2 Article

Conceptualizing a Quality of Life Framework for Girls with Rett Syndrome Using Qualitative Methods

Related references

Note: Only part of the references are listed.
Article Clinical Neurology

The trajectories of sleep disturbances in Rett syndrome

Kingsley Wong et al.

JOURNAL OF SLEEP RESEARCH (2015)

Article Gastroenterology & Hepatology

Gastrointestinal Dysmotility in Rett Syndrome

Gordon Baikie et al.

JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION (2014)

Article Education, Special

Community participation: Conversations with parent-carers of young women with Rett syndrome

Ellen M. Walker et al.

JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY (2014)

Article Psychology, Developmental

Finding out what matters: validity of quality of life measurement in young people with ASD

L. Tavernor et al.

CHILD CARE HEALTH AND DEVELOPMENT (2013)

Article Clinical Neurology

Using a large international sample to investigate epilepsy in Rett syndrome

Xinhua Bao et al.

DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY (2013)

Article Public, Environmental & Occupational Health

Is physical activity in natural environments better for mental health than physical activity in other environments?

Richard Mitchell

SOCIAL SCIENCE & MEDICINE (2013)

Article Genetics & Heredity

Barriers to Diagnosis of a Rare Neurological Disorder in China-Lived Experiences of Rett Syndrome Families

Faye Lim et al.

AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2012)

Article Genetics & Heredity

The Diagnostic Odyssey to Rett Syndrome: The Experience of an Australian Family

Marisa Knott et al.

AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2012)

Article Biodiversity Conservation

The impacts of nature experience on human cognitive function and mental health

Gregory N. Bratman et al.

YEAR IN ECOLOGY AND CONSERVATION BIOLOGY (2012)

Article Gastroenterology & Hepatology

Gastrointestinal and Nutritional Problems Occur Frequently Throughout Life in Girls and Women With Rett Syndrome

Kathleen J. Motil et al.

JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION (2012)

Article Clinical Neurology

The conductive environment enhances gross motor function of girls with Rett syndrome. A pilot study

Meir Lotan et al.

DEVELOPMENTAL NEUROREHABILITATION (2012)

Article Pediatrics

Trends in the Diagnosis of Rett Syndrome in Australia

Stephanie Fehr et al.

PEDIATRIC RESEARCH (2011)

Article Genetics & Heredity

Linking MECP2 and Pain Sensitivity: The Example of Rett Syndrome

Jenny Downs et al.

AMERICAN JOURNAL OF MEDICAL GENETICS PART A (2010)

Article Clinical Neurology

Rett Syndrome: Revised Diagnostic Criteria and Nomenclature

Jeffrey L. Neul et al.

ANNALS OF NEUROLOGY (2010)

Article Clinical Neurology

Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parents

Elise Davis et al.

DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY (2009)

Review Psychology, Developmental

Practitioner Review: Quality of life in child mental health - conceptual challenges and practical choices

David Coghill et al.

JOURNAL OF CHILD PSYCHOLOGY AND PSYCHIATRY (2009)

Article Education, Special

Measuring the quality of life of people with profound multiple disabilities using the QOL-PMD: First results

Katja Petry et al.

RESEARCH IN DEVELOPMENTAL DISABILITIES (2009)

Article Clinical Neurology

A qualitative study of the health-related quality of life of disabled children

Bridget Young et al.

DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY (2007)

Article Education, Special

Repetitive and ritualistic behaviour in children with Prader-Willi syndrome and children with autism

N Greaves et al.

JOURNAL OF INTELLECTUAL DISABILITY RESEARCH (2006)

Article Education, Special

Quality of life and its measurement: important principles and guidelines

MA Verdugo et al.

JOURNAL OF INTELLECTUAL DISABILITY RESEARCH (2005)

Article Psychology, Developmental

The Rett Syndrome Behaviour Questionnaire (RSBQ): refining the behavioural phenotype of Rett syndrome

RH Mount et al.

JOURNAL OF CHILD PSYCHOLOGY AND PSYCHIATRY (2002)

Article Psychology, Clinical

Development and initial validation of the Child Routines Inventory

SE Sytsma et al.

JOURNAL OF PSYCHOPATHOLOGY AND BEHAVIORAL ASSESSMENT (2001)

Article Clinical Neurology

MeCP2 mutations in children with and without the phenotype of Rett syndrome

K Hoffbuhr et al.

NEUROLOGY (2001)

Article Psychology, Developmental

The parent-form child health questionnaire in Australia: Comparison of reliability, validity, structure, and norms

E Waters et al.

JOURNAL OF PEDIATRIC PSYCHOLOGY (2000)