Journal
JOURNAL OF AMBULATORY CARE MANAGEMENT
Volume 37, Issue 2, Pages 120-126Publisher
LIPPINCOTT WILLIAMS & WILKINS
DOI: 10.1097/JAC.0000000000000025
Keywords
asthma; patient portals; shared decision making
Categories
Funding
- Chair's Initiative Grant
- William Wikoff Smith Endowed Chair in Pediatric Genomics from The Children's Hospital of Philadelphia (CHOP)
- Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) [K23HD059919]
- Centers for Medicare & Medicaid Services
- Agency for Health Care Research and Quality (AHRQ)
- C-PRL
- AHRQ [1P30HS021645]
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We describe the user-centered development of an electronic medical record-based portal, MyAsthma, designed to facilitate shared decision making in pediatric asthma. Interviews and focus groups with 7 parents of children with asthma and 51 clinical team members elicited 2 overarching requirements: that the portal should support sustained communication and ensure patient safety. Parents and clinicians prioritized features including collecting parent and child concerns and goals; symptom, side effect, and medication adherence tracking with decision support; and accessible educational materials. Iterative usability testing refined the system. MyAsthma provides a model for using technology to foster shared decision making in ambulatory care settings.
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