4.5 Article

Lived experience researchers partnering with consumers and carers to improve mental health research: Reflections from an Australian initiative

Journal

INTERNATIONAL JOURNAL OF MENTAL HEALTH NURSING
Volume 27, Issue 4, Pages 1219-1229

Publisher

WILEY
DOI: 10.1111/inm.12482

Keywords

carer involvement; consumer involvement; consumer-led research; lived experience; research partnership

Funding

  1. ACT Health [2013.21920.590, 2015.275404.340]
  2. Australian Research Council [DE150100637]
  3. National Health and Medical Research Council [1059620]

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Consumer and carer involvement in mental health research is a growing and developing field. Whilst there has been policy and in-principle support for such involvement from governments around the world, lived experience researchers conducting academic research in partnership with other consumers and carers remains uncommon. ACACIA: The Australian Capital Territory Consumer and Carer Mental Health Research Unit is based at The Australian National University and employs academic researchers with lived experience to undertake research directly relevant to the needs of mental health consumers and carers with the aim of influencing policy and practice. In this study, we share our experience of developing and conducting research within ACACIA to provide a model for meaningfully engaging mental health consumers and carers throughout the research process.

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