Journal
SPANISH JOURNAL OF PSYCHOLOGY
Volume 17, Issue -, Pages -Publisher
CAMBRIDGE UNIV PRESS
DOI: 10.1017/sjp.2014.89
Keywords
teleassistance; videoconferencing; neuromuscular disease; quality of life; social interaction
Categories
Ask authors/readers for more resources
Rare neuromuscular diseases (NDs) are a group of inherited or acquired neurological pathologies affecting the muscles and the nervous system. Their low prevalence and high geographical dispersion can cause isolation and difficulties in social interaction between affected equals. New technologies, such as videoconferencing, offer a complementary option for improving the health of this population. The purpose of this study was to assess the effectiveness of a teleassistance program at improving health-related quality of life (HRQoL) through social interaction in adults with NDs. The sample consisted of 45 participants affected by rare NDs. Twenty-four participants were assigned to the experimental group (EG), which participated in the videoconferencing sessions, and 21 to the control group. Three questionnaires were administered: WHO-DAS II, Sickness Impact Profile, and SF-36 Health Survey. Effectiveness was assessed by a pre-post design. An online psychosocial program was applied over three-month period. Data revealed an improvement of the EG in psychosocial variables, e.g. Getting along with people (z = -2.289, r = -.47, p <= .05) or Psychosocial Domain (z = -2.404, r = -.49, p <= .05), and in physical variables, e.g. Life activities (z = -2.844, r = -.58, p <= .05). Social interaction appeared as a relevant factor at improving HRQoL levels. High levels of satisfaction about the teleassistance program were reported.
Authors
I am an author on this paper
Click your name to claim this paper and add it to your profile.
Reviews
Recommended
No Data Available