Journal
GESUNDHEITSWESEN
Volume 77, Issue 2, Pages E37-E42Publisher
GEORG THIEME VERLAG KG
DOI: 10.1055/s-0034-1396805
Keywords
data protection; record linkage; informed consent; routine data
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Some German cohort studies have already linked secondary and registry data with primary data from interviews and medical examinations. This offers the opportunity to obtain more valid information by taking advantage of the strengths of these data synergistically and overcome their individual weaknesses at the same time. The potential and the requirements for linking secondary and registry data with primary data from cohort studies is described generally and illustrated by the example of the German National Cohort (GNC). The transfer and usage of secondary and registry data require that administrative and logistic efforts be made over the whole study period. In addition, rigid data protection regulations for using social data have to be observed. The particular strengths of secondary and registry data, namely their objectivity and independence from recall bias, add to the strengths of newly collected primary data and improve the assessment of morbidity end-points, exposure history and need of patient care. Moreover, new insights on quality and on the added value of linking different data sources may be obtained.
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