Journal
ADMINISTRATION & SOCIETY
Volume 47, Issue 7, Pages 827-850Publisher
SAGE PUBLICATIONS INC
DOI: 10.1177/0095399713489829
Keywords
lay participation; health care organization; patient participation; public participation; decision making
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Lay participation in health care decision making lacks an adequate analysis from an organizational perspective. This article aims to develop conceptual devices to analyze policies and practices and the ways in which these could be further developed. By recapping established frameworks and drawing on theories of professional organizations, four participatory roles and their potential to adapt organizational decisions to internal requirements and external challenges are elaborated. While individual patient participation is widely acknowledged, there is still a lack of systematic approaches to the roles of significant others, patient groups, and the broader community and their implementation within health care organizations.
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