Journal
DISABILITY AND REHABILITATION
Volume 41, Issue 14, Pages 1727-1738Publisher
TAYLOR & FRANCIS LTD
DOI: 10.1080/09638288.2018.1445302
Keywords
Controlled vocabulary; International Classification of Functioning Disability and Health; psychological factors; personal factors
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Funding
- Swiss Paraplegic Research (SPF), Nottwil, Switzerland
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Purpose: To discuss the representation and organization of information describing persons' lived experience of health from a personal factors perspective in the light of the International Classification of Functioning, Disability and Health, using spinal cord injury as a case in point for disability. Methods: The scientific literature was reviewed, discussion rounds conducted, and qualitative secondary analyses of data carried out using an iterative inductive-deductive approach. Results: Conceptual considerations are explicated that distinguish the personal factors perspective from other components of the International Classification of Functioning, Disability and Health. A representation structure is developed that organizes health-related concepts describing the internal context of functioning. Concepts are organized as individual facts, subjective experiences, and recurrent patterns of experience and behavior specifying 7 areas and 211 concept groups. Conclusions: The article calls for further scientific debate on the perspective of personal factors in the light of the International Classification of Functioning, Disability and Health. A structure that organizes concepts in relation to a personal factors perspective can enhance the comprehensiveness, transparency and standardization of health information, and contribute to the empowerment of persons with disabilities.
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