Journal
DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE
Volume 15, Issue 5, Pages 1082-1099Publisher
SAGE PUBLICATIONS LTD
DOI: 10.1177/1471301214554720
Keywords
couple; dyadic dynamic; early-onset dementia; interpretative phenomenological analysis; qualitative study
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Funding
- Fond de Recherche du Quebec-Sante (Quebec)
- Canadian Institutes of Health Research (Canada)
- Agence Nationale de Recherche (France) [ANR-10-MALZ-0102-01]
- LabEx (excellence laboratory, program investment for the future)
- DISTALZ (Development of Innovative Strategies for a Transdisciplinary approach to Alzheimer disease)
- MESHS (Maison Europeenne des Sciences de l'Homme et de la Societe, Lille, France)
- Agence Nationale de la Recherche (ANR) [ANR-10-MALZ-0102] Funding Source: Agence Nationale de la Recherche (ANR)
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Objective: The growing interest in early-onset dementia has attracted attention to the situation and experiences of the caregiver, most often the spouse. Several qualitative studies on caregiving spouses have underlined the importance of the feeling of loss, the change of role reported by the caregiving spouses, and the strategies used to protect the person with dementia, all of which raise the question of the relational dynamics at play in these dyads. The present study on 16 couples examines the experiences of each partner, as well as the kinds of interactions taking place within the dyad and how they have evolved since the disease began. Design: An interpretative phenomenological analysis was conducted on dyadic semi-structured interviews. Results: Seven axes emerged from the analyses, showing that control over symptoms gradually leads to deterioration of marital interactions and to the components of marital dissolution.
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