4.0 Article

Distance delivery of a spoken language intervention for school-aged and adolescent boys with fragile X syndrome

Journal

DEVELOPMENTAL NEUROREHABILITATION
Volume 21, Issue 1, Pages 48-63

Publisher

TAYLOR & FRANCIS INC
DOI: 10.1080/17518423.2017.1369189

Keywords

Distance teleconferencing; expressive language sampling; narrative story-telling; parent-implemented intervention

Funding

  1. National Institute of Child Health and Human Development [U54 HD079125]
  2. F. Hoffman-LaRoche, Ltd.
  3. Roche TCRC, Inc.
  4. Neuren Pharmaceuticals Limited
  5. Marinus
  6. Novartis
  7. Alcobra
  8. Neuren

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A small randomized group design (N = 20) was used to examine a parent-implemented intervention designed to improve the spoken language skills of school-aged and adolescent boys with FXS, the leading cause of inherited intellectual disability. The intervention was implemented by speech-language pathologists who used distance video-teleconferencing to deliver the intervention. The intervention taught mothers to use a set of language facilitation strategies while interacting with their children in the context of shared story-telling. Treatment group mothers significantly improved their use of the targeted intervention strategies. Children in the treatment group increased the duration of engagement in the shared story-telling activity as well as use of utterances that maintained the topic of the story. Children also showed increases in lexical diversity, but not in grammatical complexity.

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