Journal
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES
Volume 31, Issue -, Pages 191-202Publisher
WILEY
DOI: 10.1111/jar.12353
Keywords
adults; family carers; health; intellectual disabilities; positive gains; well-being
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Funding
- Knowledge Economy Skills Scholarships (KESS), European Social Fund
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BackgroundProviding long-term care to an adult relative with intellectual disability can impact negatively on caregivers' health and well-being. MethodsData were collected via online and postal questionnaires on 110 family carers' physical and psychological health, family stress and perceived positive gains from caring. Psychological adaptation and carers' satisfaction with available support were also examined. ResultsStudy participants reported more health problems than general populations. Higher support needs of care recipients were associated with increased family stress. Carers being female were associated with lower family stress. Older age and better socio-economic position were associated with better psychological outcomes. Other associations were consistent with psychological adaption and perceived helpfulness of support buffering negative outcomes and facilitating positive gains from caring. ConclusionsFamily carers of adults with intellectual disability appear to experience poorer health outcome than population norms. Adaption to the caregiving role may buffer negative outcomes. Further large scale, population-based, longitudinal research is needed.
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