Journal
QUALITY OF LIFE RESEARCH
Volume 27, Issue 5, Pages 1119-1131Publisher
SPRINGER
DOI: 10.1007/s11136-017-1771-6
Keywords
Quality of life; Premature birth; Parents; Family-integrated care; Scoping review
Categories
Funding
- FEDER funding from the Operational Programme Factors of Competitiveness-COMPETE
- national funding from the Foundation for Science and Technology-FCT (Portuguese Ministry of Science, Technology and Higher Education) under the project Parenting roles and knowledge in Neonatal Intensive Care Units [FCOMP-01-0124-FEDER-019902, FCT PTDC/CS-ECS/120750/2010]
- Unidade de Investigacao em Epidemiologia-Instituto de Saude Publica da Universidade do Porto (EPIUnit) [POCI-01-0145-FEDER-006862, UID/DTP/04750/2013]
- FCT [PD/BD/105830/2014, SFRH/BPD/103562/2014]
- POPH/FSE Program
- FCT Investigator contract [IF/01674/2015]
- Fundação para a Ciência e a Tecnologia [PD/BD/105830/2014] Funding Source: FCT
Ask authors/readers for more resources
To synthesize the body of knowledge on the factors influencing the QoL of mothers and fathers of preterm infants. A scoping review was performed. Publications indexed in PubMedA (R), Web of Science (TM), CINAHLA (R) and PsycINFOA (R) were searched, targeting studies presenting original empirical data that examined parental perception on QoL after a preterm delivery. Eligibility and data extraction were conducted by two independent researchers. The main quantitative findings were synthesized and qualitative data were explored by content analysis. The studies, 11 quantitative and 1 mixed methods, were derived mainly from the USA (n = 6). Heterogeneity across the studies was observed regarding the operationalization of QoL and the use of units of analysis (mothers, parents, families and caregivers). In a context where 40 out of 45 covariates were analysed by only one or two studies, results suggested that parental QoL after a preterm delivery is influenced by factors related with mother's characteristics, family issues and health care environment rather than infants' variables. Factors regarding fathers' characteristics and structural levels were not addressed. Standardizing the operationalization of the QoL when analysing mothers and fathers of preterm infants calls for a structured questionnaire adapted to their specific needs. Further research should include both mothers and fathers, invest in mixed methods approaches and be performed in different countries and settings for allowing integration and comparison of findings.
Authors
I am an author on this paper
Click your name to claim this paper and add it to your profile.
Reviews
Recommended
No Data Available