Journal
ALZHEIMER DISEASE & ASSOCIATED DISORDERS
Volume 29, Issue 3, Pages 236-241Publisher
LIPPINCOTT WILLIAMS & WILKINS
DOI: 10.1097/WAD.0000000000000072
Keywords
acute care; dementia; family caregiver; mixed methods; function
Categories
Funding
- Alzheimer's Association International Research Grant Award [NIRG-12-242090]
- National Center for the Advancement of Translational Science (NCATS)
- National Institutes of Health [UL1 TR000038]
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Background:Baseline health and functional vulnerabilities increase the risk for complications in persons with dementia and predispose family caregivers (FCGs) to increased stress.Methods:This secondary analysis used a combined quantitative and qualitative approach. Regression analyses examined the contribution of patient and FCG characteristics to FCG anxiety. Interviews with FCGs explored the experiences and responses of FCGs during hospitalization of their family member with dementia.Results:Lower patient physical function and higher caregiver strain were associated with higher FCG anxiety. FCGs described the following themes related to the hospitalization: (1) added strain, (2) care-related worries, (3) keeping vigil, (4) need to be heard, and (5) enablers of FCGs.Conclusions:Routine evaluation of caregiver strain and baseline patient function is integral to informing the transitional planning for persons with dementia. The FCG responses suggest that a multifactorial approach (family-centered policies of partnership in care, staff education addressing the specialized needs of patients and family members, and attention to promoting functional recovery) may benefit both hospitalized patients with dementia as well as FCGs and warrants future research.
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