Journal
AJIDD-AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES
Volume 123, Issue 4, Pages 371-381Publisher
AMER ASSOC INTELLECTUAL DEVELOPMENTAL DISABILITIES
DOI: 10.1352/1944-7558-123.4.371
Keywords
Medicaid; intellectual and developmental disabilities; identification algorithm
Categories
Funding
- Association of University Centers on Disability (AUCD)
- Centers for Disease Control & Prevention (CDC), Cooperative Agreement, Office for State, Tribal, Local and Territorial Support [OT13-1302]
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This project sought to identify Medicaid members with intellectual and developmental disabilities (IDD) in five states (Delaware, Iowa, Massachusetts, New York, and South Carolina) to develop a cohort for subsequent analyses of medical conditions and service utilization. We estimated that over 300,000 Medicaid members in these states had IDD. All members with diagnostic codes for IDD were identified and the three most frequent diagnoses were unspecified intellectual disability, autism or pervasive developmental disorder, and cerebral palsy. The percentage of Medicaid members with IDD ranged from 2.3% in New York to 4.2% in South Carolina. Identifying and characterizing people with IDD is a first step that could guide public health promotion efforts for this population.
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