4.5 Article

HEALTH, FUNCTIONING AND ACCESSIBILITY AMONG SPINAL CORD INJURY POPULATION IN FINLAND: PROTOCOL FOR THE FINSCI STUDY

Journal

JOURNAL OF REHABILITATION MEDICINE
Volume 51, Issue 4, Pages 273-280

Publisher

FOUNDATION REHABILITATION INFORMATION
DOI: 10.2340/16501977-2539

Keywords

spinal cord injury; International Classification of Functioning Disability and Health; data collection; questionnaire design; community survey; methodology

Funding

  1. Finnish Association of People with Physical Disabilities (2017-2019)
  2. Oulu University Hospital [VTR 2017]
  3. Department of Internal Medicine and Rehabilitation, Helsinki University Hospital [HUS/53/2017 9, HUS/76/2018 11]
  4. Validia Rehabilitation [HUS-VTR 9.3.2017]

Ask authors/readers for more resources

Background and purpose: The purpose of the Finnish Spinal Cord Injury Study (FinSCI) is to identify factors related to the health and functioning of people with spinal cord injury, their challenges with accessibility, and how such factors are interconnected. The International Classification of Functioning, Disability and Health (ICF) is used as a structured framework in the study. Design: Protocol of mixed methods study. Results: Study participants were recruited from all 3 spinal cord injury outpatient clinics in Finland. The final target group consists of 1,789 subjects with spinal cord injury. The final questionnaire was formed from 5 different patient-reported instruments. The spinal cord injury-specified instruments are the Spinal Cord Injury Secondary Condition Scale, the Spinal Cord Independence Measure, and the Nottwil Environmental Factors Inventory Short Form. In addition, questions from the following generic instruments were chosen after a selection process: the Patient-Reported Outcomes Measurement Information System, PROM'S (R), and the National Study of Health, Well-being and Service, FinSote. Altogether, the final questionnaire covers 64 ICF categories and consists of 151 ICF-linked questions. Conclusion: The formulated questionnaire covers widely different aspects of health, functioning and accessibility. The questionnaire results and subsequent interviews will help in developing care and rehabilitation policies and services for people with spinal cord injury.

Authors

I am an author on this paper
Click your name to claim this paper and add it to your profile.

Reviews

Primary Rating

4.5
Not enough ratings

Secondary Ratings

Novelty
-
Significance
-
Scientific rigor
-
Rate this paper

Recommended

No Data Available
No Data Available