4.5 Article

Personal Growth Experiences of Parents to Children with Autism Spectrum Disorder

Journal

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS
Volume 49, Issue 4, Pages 1330-1341

Publisher

SPRINGER/PLENUM PUBLISHERS
DOI: 10.1007/s10803-018-3784-6

Keywords

Parenting; Crisis related growth; Autism spectrum disorder; Qualitative research; Cultural differences

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Experiences of parenting a child with Autism Spectrum Disorder (ASD) have mostly been studied in relation to hardship. The current study explored personal growth experiences of Israeli parents to children with ASD, specifically in relation to Tedeschi and Calhoun's crisis-related growth model. Nineteen parents were interviewed, and qualitative categorical content analysis was performed. Four major growth themes emerged: Empowerment and personal strength, Existential perspective/spiritual-emotional experience, Interpersonal and Expertise, professional or political involvement. Themes were largely consistent with the crisis-related growth model, with some being unique to the current subject of inquiry. Findings indicated growth might occur differently in different cultures. Clinically, with some parents, the focus regarding the parenting of their child with ASD should be shifted from adjustment to growth.

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