4.4 Article

'People like me don't get support': Autistic adults' experiences of support and treatment for mental health difficulties, self-injury and suicidality

Journal

AUTISM
Volume 23, Issue 6, Pages 1431-1441

Publisher

SAGE PUBLICATIONS LTD
DOI: 10.1177/1362361318816053

Keywords

Autism spectrum condition; mental health; self-injury; suicide; support; treatment

Funding

  1. Economic and Social Research Council [ES/N000501/2]
  2. Autistica [7247]
  3. Coventry University
  4. Autism Research Trust
  5. MRC
  6. National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care East of England at Cambridgeshire and Peterborough NHS Foundation Trust
  7. Innovative Medicines Initiative Joint Undertaking from the European Union's Seventh Framework Programme (FP7/2007-2013) [115300]
  8. EFPIA companies
  9. ESRC [ES/N000501/1, ES/N000501/2] Funding Source: UKRI
  10. MRC [G0600977] Funding Source: UKRI

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Autistic people are at high risk of mental health problems, self-injury and suicidality. However, no studies have explored autistic peoples' experiences of treatment and support for these difficulties. In partnership with a steering group of autistic adults, an online survey was developed to explore these individuals' experiences of treatment and support for mental health problems, self-injury and suicidality for the first time. A total of 200 autistic adults (122 females, 77 males and 1 unreported) aged 18-67 (mean = 38.9 years, standard deviation = 11.5), without co-occurring intellectual disability, completed the online survey. Thematic analysis of open-ended questions resulted in an overarching theme that individually tailored treatment and support was both beneficial and desirable, which consisted of three underlying themes: (1) difficulties in accessing treatment and support; (2) lack of understanding and knowledge of autistic people with co-occurring mental health difficulties and (3) appropriate treatment and support, or lack of, impacted autistic people's well-being and likelihood of seeing suicide as their future. Findings demonstrate an urgent need for autism treatment pathways in mental health services.

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