4.3 Article

The disvalue of death in the global burden of disease

Journal

JOURNAL OF MEDICAL ETHICS
Volume 44, Issue 3, Pages 192-198

Publisher

BMJ PUBLISHING GROUP
DOI: 10.1136/medethics-2017-104365

Keywords

concept of health; death; epidemiology; perinatal mortality; quality; value of life; personhood

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In the Global Burden of Disease study, disease burden is measured as disability-adjusted life years (DALYs). The paramount assumption of the DALY is that it makes sense to aggregate years lived with disability (YLDs) and years of life lost (YLLs). However, this is not smooth sailing. Whereas morbidity (YLD) is something that happens to an individual, loss of life itself (YLL) occurs when that individual's life has ended. YLLs quantify something that involves no experience and does not take place among living individuals. This casts doubt on whether the YLL is an individual burden at all. If not, then YLDs and YLLs are incommensurable. There are at least three responses to this problem, only one of which is tenable: a counterfactual account of harm. Taking this strategy necessitates a re-examination of how we count YLLs, particularly at the beginning of life.

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