Journal
JOURNAL OF ADVANCED NURSING
Volume 73, Issue 11, Pages 2609-2621Publisher
WILEY
DOI: 10.1111/jan.13335
Keywords
coping; family carers; focus groups; long-term condition; non-pharmacological intervention; nursing; Parkinson's disease; psychosocial adjustment; quality of life
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Funding
- University of Navarre (Spain) [PIUNA 2014-23]
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Aims: The aim of this study were: (1) To explore the meaning that coping with Parkinson's disease has for patients and family carers; (2) To suggest the components of an intervention focused on enhancing their coping with the disease. Background: Adapting to Parkinson's disease involves going through many difficult changes; however, it may improve quality of life in patients and family carers. One of the key aspects for facilitating the psychosocial adjustment to Parkinson's disease is the strengthening of coping skills. Design: A sequential explanatory mixed methods study was carried out. Findings from the qualitative phase are presented. Methods: Data were collected in May 2014 through three focus groups: one of people with Parkinson's disease (n = 9), one of family carers (n = 7) and one of healthcare professionals (n = 5). All focus groups were digitally recorded and transcribed verbatim and content analysis was independently carried out by two researchers. Findings: The participants coincided in highlighting that coping with Parkinson's disease helped the patient and the family carer in their search for balance; and it implied a transformation in their lives. To aid the process of coping with Parkinson's disease, a multifaceted intervention is proposed. Conclusion: Coping with Parkinson's disease is a complex process for both patients and family carers and it should therefore be considered a standard service in healthcare policies aimed at this group. The proposed intervention constitutes a nursing tool which has great potential to improve the quality of life in Parkinson's disease and in other long-term conditions.
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