Journal
CONTEMPORARY CLINICAL TRIALS COMMUNICATIONS
Volume 17, Issue -, Pages -Publisher
ELSEVIER INC
DOI: 10.1016/j.conctc.2019.100510
Keywords
Research registry; Clinical trials; Recruitment; Consent recall; Communication
Categories
Funding
- University of Florida Clinical and Translational Science Institute
- NIH National Center for Advancing Translational Sciences [UL1TR001427]
Ask authors/readers for more resources
Introduction: Health research registries have great potential to increase awareness of research opportunities among diverse patient populations and reduce disparities in clinical trial accrual. However, little research has focused on patients' intentions to participate in clinical trials once they are enrolled in the registry and their intentions to remain in the registry over time. Methods: Patients (N = 312) enrolled in a university-based health research registry (i.e., Consent2Share) in the southeastern region of the US participated in an online survey. Results: Health research registry knowledge, perceived values, self-efficacy, trust, having chronic health concerns, and consent recall were positively correlated with intentions to remain enrolled in the research registry and participate in future clinical trials. Health research registry consent recall had significant positive associations with registry knowledge, perceived values, trust, registry retention, and participating in future trials. Conclusion: The process of consenting patients to the health research registry is important for recruitment, registry retention, and participation in future clinical trials. We identified key points of emphasis to expand participation in research registries as a strategy to increase clinical trial enrollment, such as deploying precision messages and tailored interventions.
Authors
I am an author on this paper
Click your name to claim this paper and add it to your profile.
Reviews
Recommended
No Data Available