3.8 Article

Social Capital and Autism in Young Adulthood: Applying Social Network Methods to Measure the Social Capital of Autistic Young Adults

Journal

AUTISM IN ADULTHOOD
Volume 2, Issue 3, Pages 243-254

Publisher

MARY ANN LIEBERT, INC
DOI: 10.1089/aut.2019.0058

Keywords

social networks; duocentric networks; social capital; autism spectrum disorders; transition to adulthood; parent networks

Funding

  1. Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) [UJ2MC31073]
  2. Organization for Autism Research
  3. HRSA [UA3MC11055]
  4. NIH Social Networks and Health Fellowship training grant [R25HD079352]

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Social isolation is a core challenge associated with autism. Interpersonal relationships and the resources and support embedded in the social networks of autistic young adults could impact key adult outcomes, including quality of life, mental health, employment, and independence. However, little research systematically measures the networks of autistic young adults and network impact on key adult outcomes. This article demonstrates how social network analysis can be adapted for the field of autism to measure young adult networks. We provide examples as to how this approach could be implemented to yield key insights into the amount and quality of interpersonal relationships and the types of resources embedded in the networks of autistic young adults. The network protocol was feasibility tested with autistic adults during the posthigh school transition period (n = 17, 19-27 years). The parents of three of the recruited young adults also successfully completed a complementary network survey, allowing for the inclusion of the parent-reported network using duocentric network analysis, never before applied to parent-child networks. The implementation data collected from the study suggest feasibility of egocentric and duocentric approaches, with several important modifications to adapt the measure for the field of autism. The future potential of social network research for understanding autism in adulthood is discussed.

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