4.5 Article

Healthcare providers' caring: Nothing is too small for parents and children hospitalized for heart surgery

Journal

HEART & LUNG
Volume 46, Issue 3, Pages 166-171

Publisher

MOSBY-ELSEVIER
DOI: 10.1016/j.hrtlng.2017.01.007

Keywords

Congenital heart disease; Cardiac surgery; Children hospitalized; Directed content analysis; Healthcare provider caring; Swanson Caring Theory

Funding

  1. Jane Winningham Smith Scholarship from the School of Nursing at the University of North Carolina at Chapel Hill, North Carolina
  2. Dr. Lester Sauvage Research Fund from the Hope Heart Institute, Seattle, WA

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Background: Parents of children with congenial heart disease (CHD) face frequent healthcare encounters due to their child's care trajectory. With an emphasis on assuring caring in healthcare, it is necessary to understand parents' perceptions of healthcare providers' actions when their child undergoes heart surgery. Objectives: To describe parents' perceptions of healthcare providers' actions when their child is diagnosed with CHD and undergoes heart surgery. Methods: This is a qualitative study with in-depth interviews. Parents of children with CHD were interviewed twice after surgery. We analyzed data using directed content analysis guided by Swanson Caring Theory. Results: Findings of the study indicate that parents perceive caring when providers seek to understand them (knowing); accompany them physically and emotionally (being with); help them (doing for); support them to be the best parents they can be (enabling); and trust them to care for their child (maintaining belief). Conclusions: Healthcare providers play an irreplaceable role in alleviating parents' emotional toll when their child undergoes cardiac surgery. Providers' caring is an integral component in healthcare. (C) 2017 Elsevier Inc. All rights reserved.

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