Alignment and mismatch in role relations at end-of-life: A constructivist grounded theory study

In this Australian, constructivist grounded theory study, we undertook in-depth interviews with 11 dying people and 8 caregivers to examine their perspectives on role relations at end-of-life. We found that situations of role alignment between dying people and their family and friends support positive relational and practical outcomes, whereas role mismatch can cause considerable distress. Factors contributing to role mismatch at end-of-life were: dying people and their caregivers' efforts to shield each other from emotional harm; fear of social exclusion; and unwanted focus on the dying identity. Our findings highlight a need for flexibility and adaptability in end-of-life role relations.

Automated summary

This Australian study found that alignment in roles between dying individuals and their family and friends can lead to positive outcomes, while role mismatch can cause distress. Factors contributing to role mismatch include efforts to shield emotional harm, fear of social exclusion, and unwanted focus on the dying identity. Flexibility and adaptability in end-of-life role relations are needed to address these challenges.