Journal
QUALITATIVE HEALTH RESEARCH
Volume 31, Issue 9, Pages 1596-1608Publisher
SAGE PUBLICATIONS INC
DOI: 10.1177/1049732321997133
Keywords
developmental disabilities; enteral nutrition; ecocultural theory; interviews; pediatrics; qualitative; stimulated recall; Sweden
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Funding
- Department of Research and Development, Region Halland, Sweden [894731]
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This study explores parents' descriptions of mealtimes and food-related challenges when living with a child using a gastrostomy feeding tube. Parents strive to establish mealtimes in line with their cultural context, but struggle to reach a point of satisfaction. Health care professionals need to address not only the medical aspects but also the potential psychological and social consequences for ordinary family life when caring for a child with a G-tube.
Built on the important functions daily routines serve families and child health, this study aimed to explore parents' descriptions of mealtimes and food-related challenges when living with a child using a gastrostomy feeding tube. The study was informed by ecocultural theory and based on in-depth interviews combined with stimulated recall. The interviews of 10 parents were inductively analyzed by means of qualitative content analysis. Four main categories comprised the parents' descriptions: One situation, different functions, On the child's terms, Doing something to me, and An unpredictable pattern, with one overarching theme. The analyses showed that the parents strived to establish mealtimes in line with their cultural context, although they struggled to reach a point of satisfaction. The study highlights the importance of health care professionals to address the medical aspects of caring for a child with a G-tube, but also the potential psychological and social consequences for ordinary family life.
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