Journal
JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION
Volume 28, Issue 2, Pages 354-359Publisher
OXFORD UNIV PRESS
DOI: 10.1093/jamia/ocaa214
Keywords
electronic health record; recruitment; clinical research
Categories
Funding
- National Center for Advancing Translational Sciences of the National Institutes of Health [UL1TR002378, UL1TR002319]
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Through an online experimental survey, we found that participants are most concerned about information, privacy, and having enough time to think in an authorization for contact (AFC) program, with specific clusters having concerns about privacy, lack of interest in research, and not wanting to be bothered. A novel flyer with a simple and positive framing was associated with lower odds of not wanting to be bothered and not being interested in research, suggesting it may be a more effective recruitment tool.
We conducted an online experimental survey to evaluate attitudes toward an authorization for contact (AFC) program allowing researchers to contact patients about studies based on electronic record review. A total of 1070 participants were randomly assigned to 1 of 3 flyers varying in design and framing. Participants were asked to select concerns about and reasons for signing up for AFC. Logistic regression and latent class analysis were conducted. The most commonly selected concerns included needing more information (43%), privacy (40%), and needing more time to think (28%). A minority were not interested in participating in research (16%) and did not want to be bothered (15%). Latent class analysis identified clusters with specific concerns about privacy, lack of interest in research, and not wanting to be bothered. A novel flyer with simple and positive framing was associated with lower odds of both not wanting to be bothered (P = .01) and not being interested in research (P = .01). Many concerns about AFC programs appear nonspecific. Addressing privacy, lack of interest in research, and not wanting to be bothered warrant further study as ways to enhance recruitment.
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