4.6 Article

Integrating family and friend support, information technology, and diabetes education in community-centric diabetes self-management

Journal

Publisher

OXFORD UNIV PRESS
DOI: 10.1093/jamia/ocaa223

Keywords

diabetes self-management; social support; telehealth; health information technology intervention; action research

Funding

  1. University of Hawai'i faculty research funds

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The study piloted a program in a rural island community in Hawai'i that integrates friend-and-family support, community health services, telehealth-enabled DSM education, and mobile technologies to improve patient engagement and health. Leveraging social capital and health information technology, the program successfully improved understanding of diabetes, DSM activities, and communication skills for effective disease management support.
Objective: Diabetes self-management (DSM) education, social support, and information technology interventions can improve patient engagement and health. A major challenge is animating, integrating, and accessing resources in under-resourced, rural communities. Set in an island community in Hawai'i, this study piloted a program that integrated friend-and-family support, community health services, telehealth-enabled DSM education, and mobile technologies by activating the community's social capital to support the program. Materials and Methods: An action research approach informed the design and implementation of a community-based DSM program that included: friends and family support, telehealth classes, personalized consultations, Bluetooth-enabled blood glucose monitors, and text messaging support. Outcomes were evaluated using biometric data, surveys, interviews, and participant observations. Results: The study spanned 9 months with 7 dyads, each with 1 individual with type 2 diabetes and a friend or family member. Six of the 7 participants with diabetes experienced reduced hemoglobin A1c percentages, with 3 reducing by more than 1%. The seventh participant maintained a hemoglobin A1c level within American Diabetes Association recommended ranges. DSM knowledge and self-care behaviors improved overall. Interviews and participant observations highlighted program strengths and social challenges associated with the interpersonal relationships between the members of the dyads. Conclusions: A community-centric diabetes program can enhance understanding of diabetes etiology, DSM activities, and communication skills for effective disease management support in under-resourced rural communities. Social capital among community members, leveraged with health information technology, can catalyze and integrate limited health system resources for DSM and social support as a cost-effective strategy to develop community-centric chronic healthcare management initiatives.

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