4.4 Review

A narrative review of current evidence supporting the implementation of electronic patient-reported outcome measures in the management of chronic diseases

Journal

THERAPEUTIC ADVANCES IN CHRONIC DISEASE
Volume 12, Issue -, Pages -

Publisher

SAGE PUBLICATIONS LTD
DOI: 10.1177/20406223211015958

Keywords

Patient-reported outcomes; PROs; Quality of life; Outcome assessment; Electronic patient-reported outcomes; ePROs; ePROM systems; Digital health; Chronic diseases; Symptom monitoring

Funding

  1. National Institute of Health Research (NIHR) Birmingham Biomedical Research Centre (BRC)
  2. NIHR Applied Research Centre (ARC), West Midlands at the University of Birmingham and University Hospitals Birmingham NHS Foundation
  3. Innovate UK (UK Research and Innovation)
  4. Gilead Sciences Ltd
  5. Janssen Pharmaceuticals, Inc.
  6. Agency for Health Research and Quality/Patient-Centred Outcomes Research Institute Learning Health Systems Scholar K12 award [K12HS026395]
  7. Canadian Institutes of Health Research
  8. Kidney Foundation of Canada

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An important application of telemedicine is the use of personal computers and mobile devices to collect patients' self-reported health status, known as PROs. Electronic PROMs (ePROMs) facilitate remote care for patients with chronic diseases. Studies have shown that patients increasingly prefer electronic modes of assessment.
An application of telemedicine of growing interest and relevance is the use of personal computers and mobile devices to collect patient-reported outcomes (PROs). PROs are self-reports of patients' health status without interpretation by anyone else. The tools developed to assess PROs are known as patient-reported outcomes measures (PROMs). The technological innovations that have led to an increased ownership of electronic devices have also facilitated the development of electronic PROMs (ePROMs). ePROMs are a conduit for telemedicine in the care of patients with chronic diseases. Various studies have demonstrated that the use of ePROMs in routine clinical practice is both acceptable and feasible with patients increasingly expressing a preference for an electronic mode of administration. There is increasing evidence that the use of electronic patient-reported outcome (ePROMs) could have significant impacts on outcomes valued by patients, healthcare providers and researchers. Whilst the development and implementation of these systems may be initially costly and resource-intensive, patient preferences and existing evidence to support their implementation suggests the need for continued research prioritisation in this area. This narrative review summarises and discusses evidence of the impact of ePROMs on clinical parameters and outcomes relevant to chronic diseases. We also explore recently published literature regarding issues that may influence the robust implementation of ePROMs for routine clinical practice.

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