4.5 Article

Adapting and validating the Autism Diagnostic Observation Schedule Version 2 for use with deaf children and young people

Journal

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS
Volume 52, Issue 2, Pages 553-568

Publisher

SPRINGER/PLENUM PUBLISHERS
DOI: 10.1007/s10803-021-04931-y

Keywords

Deaf; Autism Spectrum Disorder; Assessment; Delphi consensus; Child; Diagnosis; Sign language; Autism diagnostic observation schedule

Funding

  1. Medical Research Council as part of the Diagnostic Instruments for Screening Deaf Children Study (DIADS) [MR/K015435/1]
  2. MRC [MR/K015435/1] Funding Source: UKRI

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The study conducted a Delphi Consensus modification and first validation study of the ADOS-2 with deaf children and young people, showing that the tool will be a helpful addition for use with this population due to its high sensitivity and specificity.
We report a Delphi Consensus modification and first validation study of the Autism Diagnostic Observation Schedule - 2 with deaf children and young people (ADOS-2 Deaf adaptation). Validation included 122 deaf participants (aged 2-18 years), 63 with an Autism Spectrum Disorder (ASD). This was compared to a National Institute for Health and Clinical Excellence (NICE) guideline standard clinical assessment by blinded independent specialist clinicians. Results showed overall sensitivity 73% (95%CI 60%, 83%); specificity 71% (95%CI 58%, 82%), and for the more common modules 1-3 (combined as in previous studies) sensitivity 79% (95% CI 65-89%); specificity 79% (95% CI 66-89%) suggesting this instrument will be a helpful addition for use with deaf children and young people.

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