Journal
JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION
Volume 29, Issue 4, Pages 694-700Publisher
OXFORD UNIV PRESS
DOI: 10.1093/jamia/ocab226
Keywords
research data warehouse; governance; public-private partnership; public healthcare system
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Funding
- NIH National Center for Advancing Translational Science (NCATS) UCLA CTSI [UL1TR001881]
- SC-CTSI [UL1TR001855]
- UCLA CTSI info
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This case study explores the establishment of a research informatics program in the Los Angeles County Department of Health Services, focusing on patient-centered high-priority research and the importance of governance frameworks.
While much is known about governance models for research informatics programs in academic medical centers and similarly situated cancer centers, community and public health systems have been less well-characterized. As part of implementing an enterprise research governance framework, leaders in the Los Angeles County Department of Health Services established a research informatics program, including research data warehousing. The strategy is focused on high-priority, patient-centered research that leverages the investment in health IT and an efficient, sustained contribution from 2 affiliated Clinical Translational Sciences Institutes. This case study describes the foundational governance framework and policies that were developed. We share the results of several years of planning, implementation, and operations of an academically funded research informatics service core embedded in a large, multicenter county health system. We include herein a of governance documents that may serve as pragmatic models for similar initiatives.
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