Journal
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES
Volume 31, Issue 5, Pages 478-489Publisher
ELSEVIER SCIENCE INC
DOI: 10.1016/j.pedn.2016.03.023
Keywords
Neonatal intensive care; Pediatric palliative care; End-of-life care; Bereavement and coping; Parental stress
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This descriptive qualitative study explored parent experiences related to their infant's neonatal intensive care unit (NICU) hospitalization, end-of-life care, and palliative care consultation. Life and death in the NICU environment emerged as the primary theme with the following categories: ups and downs of parenting in the NICU, decision-making challenges in the NICU, and parent support. Parents encountered challenges with areas for improvement for end-of-life and palliative care in the NICU. Further research is necessary to understand barriers with integrating palliative care and curative care in the NICU, and how NICU care affects bereavement and coping outcomes after infant death. (C) 2016 Elsevier Inc. All rights reserved.
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