4.5 Article

It Defines Who I Am or It's Something I Have: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?

Journal

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS
Volume 53, Issue 2, Pages 677-687

Publisher

SPRINGER/PLENUM PUBLISHERS
DOI: 10.1007/s10803-020-04425-3

Keywords

Autism; Terminology; Autism identity; Label preference; Person-first; Identity-first

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There has been a recent shift from person-first to identity-first language in describing autism. Australian adults diagnosed with autism rated and ranked autism-related terms, with "person on the autism spectrum" being the most preferred term. The study revealed that autism is seen as a part of individual identity, highlighting the importance of rejecting stigmatizing and medicalized language while promoting diversity.
There has been a recent shift from person-first to identity-first language to describe autism. In this study, Australian adults who reported having a diagnosis of autism (N = 198) rated and ranked autism-terms for preference and offensiveness, and explained their choice in free-text. 'Autistic', 'Person on the Autism Spectrum', and 'Autistic Person' were rated most preferred and least offensive overall. Ranked-means showed 'person on the autism spectrum' was the most preferred term overall. Six qualitative themes reflected (1) autism as core to, or (2) part of one's identity, (3) 'spectrum' reflecting diversity, (4) the rejection of stigmatising and (5) medicalised language, and (6) pragmatics. These findings highlight the importance of inclusive dialogue regarding individual language preference.

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