4.6 Article

Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus

Related references

Note: Only part of the references are listed.
Review Radiology, Nuclear Medicine & Medical Imaging

Communication during children's X-ray procedures and children's experiences of the procedure: A scoping review

Holly Saron et al.

Summary: This scoping review examined communication and experiences of children undergoing X-ray procedures. The study found that radiographers dominate communication during X-ray procedures, with their communication being instructional and limiting children's involvement. The review also highlighted the importance of informing children about their X-ray and the positive experiences reported by children.

RADIOGRAPHY (2023)

Article Psychology, Developmental

Parental experiences of caring for children who have learning disabilities and procedural anxiety in hospital: An interpretive phenomenological study

Lauren Murdoch et al.

Summary: This study explores how parents care for children with learning disabilities and procedural anxiety in hospitals. The findings reveal that parents experienced emotional tolls, restraint and holding, advocacy, going it alone, and inconsistency and uncertainty in their children's care.

CHILD CARE HEALTH AND DEVELOPMENT (2022)

Article Health Care Sciences & Services

Distracting Through Procedural Pain and Distress Using Virtual Reality and Guided Imagery in Pediatric, Adolescent, and Young Adult Patients: Randomized Controlled Trial

Jennifer A. Hoag et al.

Summary: This randomized controlled trial evaluated the effectiveness of guided imagery (GI) and virtual reality (VR) in managing the procedural pain and state anxiety of children and young adults undergoing unsedated procedures. The study found that both GI and VR were equally effective in managing procedural pain, but individuals with high pain catastrophizing reported less nervousness during VR. State anxiety decreased significantly only in the VR intervention. Furthermore, those with high trait anxiety experienced less pain during GI.

JOURNAL OF MEDICAL INTERNET RESEARCH (2022)

Article Nursing

Being heard - Supporting person-centred communication in paediatric care using augmentative and alternative communication as universal design: A position paper

Gunilla Thunberg et al.

Summary: Person-centred care, considered the contemporary gold standard, can face communication challenges in paediatric care due to developmental, illness, linguistic, and disability factors. Universal design principles advocate for products usable by all, while augmentative and alternative communication strategies should be universally applied in paediatric care to support person-centred communication.

NURSING INQUIRY (2022)

Article Multidisciplinary Sciences

A multi-stage process to develop quality indicators for community-based palliative care using interRAI data

Dawn M. Guthrie et al.

Summary: Through this project, we have developed a set of valid quality indicators for home- and community-based palliative care. These indicators can be generated using existing data and serve as decision-support measures for providers and decision makers in delivering optimal care.

PLOS ONE (2022)

Article Immunology

Impact of the CARD (Comfort Ask Relax Distract) system on school-based vaccinations: A cluster randomized trial

Anna Taddio et al.

Summary: The CARD system is an acceptable and effective vaccine delivery framework that aims to reduce stress-related responses in students undergoing vaccinations. The system involves collaboration with school principals to introduce CARD to students ahead of time, and implements fear-reducing measures and student-selected coping strategies during the vaccination process. The effectiveness of CARD was confirmed in a pragmatic trial conducted in real-world settings.

VACCINE (2022)

Review Radiology, Nuclear Medicine & Medical Imaging

Interventions and methods to prepare, educate or familiarise children and young people for radiological procedures: a scoping review

Lucy Bray et al.

Summary: This scoping review examines non-invasive interventions and methods to prepare, educate, and familiarize children for radiological procedures. The study found that using different interventions, such as smartphone applications, storybooks, videos, and mock scanners, can improve children's experiences and scan quality. However, further research is needed to determine which interventions are most effective for children.

INSIGHTS INTO IMAGING (2022)

Article Health Care Sciences & Services

Developing a family-reported measure of experiences with home-based pediatric palliative and hospice care: a multi-method, multi-stakeholder approach

Jackelyn Y. Boyden et al.

Summary: The study team developed a family-reported measure for evaluating experiences with PPHC@Home, which is the first known tool specifically designed to assess family experiences with PPHC@Home in the U.S. After four phases of development and evaluation, 22 highly-valued items were identified for the final measure.

BMC PALLIATIVE CARE (2021)

Article Psychology, Clinical

Baring all: The impact of the hospital gown on patient well-being

Liza Morton et al.

BRITISH JOURNAL OF HEALTH PSYCHOLOGY (2020)

Article Health Care Sciences & Services

Practical Considerations in Using Online Modified-Delphi Approaches to Engage Patients and Other Stakeholders in Clinical Practice Guideline Development

Dmitry Khodyakov et al.

PATIENT-PATIENT CENTERED OUTCOMES RESEARCH (2020)

Article Public, Environmental & Occupational Health

Medical procedures in children using a conceptual framework that keeps a focus on human dimensions of care ? a discussion paper

Katarina Karlsson et al.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2019)

Article Nursing

Holding children for procedures: An international survey of health professionals

Lucy Bray et al.

JOURNAL OF CHILD HEALTH CARE (2018)

Review Medicine, General & Internal

Psychological interventions for needle-related procedural pain and distress in children and adolescents

Kathryn A. Birnie et al.

COCHRANE DATABASE OF SYSTEMATIC REVIEWS (2018)

Article Anesthesiology

Beyond the drugs: nonpharmacologic strategies to optimize procedural care in children

Piet L. Leroy et al.

CURRENT OPINION IN ANESTHESIOLOGY (2016)

Article Anesthesiology

Far From “Just a Poke”

C. Meghan McMurtry et al.

CLINICAL JOURNAL OF PAIN (2015)

Article Public, Environmental & Occupational Health

Parents' perspectives on supporting children during needle-related medical procedures

Katarina Karlsson et al.

INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING (2014)

Review Psychology, Clinical

Providing children with information about forthcoming medical procedures: A review and synthesis

Tiina Jaaniste et al.

CLINICAL PSYCHOLOGY-SCIENCE AND PRACTICE (2007)

Article Nursing

CHILD RESTRAINT IN THE ACUTE SETTING OF PEDIATRIC NURSING: AN EXTRAORDINARILY STRESSFUL EVENT

Maria Brenner

COMPREHENSIVE CHILD AND ADOLESCENT NURSING-BUILDNG EVIDENCE FOR PRACTICE (2007)