Living with invisible medical disabilities: experiences and challenges of Chilean university students disclosed in medical consultations

Purpose The objective of this qualitative study is to explore experiences and challenges of university students living with invisible disabilities. Methods Nine videotaped medical consultations with students, conducted at the health centre of a higher education institution in northern Chile, were analysed, drawing on the thematic analysis to organize the most salient themes. Results Three major themes were identified in the analysis, along with their subthemes: (1) experiencing overpowering symptoms, including variable, multiple, and severe symptoms; (2) facing medical, social, and academic barriers; (3) engaging in self-management behaviours, such as self-medication, self-treatment, changing therapies, and non-compliance. Conclusion As the healthcare system is mostly ineffective in diagnosing students with invisible disabilities as well as providing them with long-lasting help, the students often have to manage their conditions by themselves, without much success. It seems essential to promote the development of stronger links between health providers and universities to allow for early disability detection and awareness-raising programs within educational institutions. Further research should focus on strategies promoting effective support mechanisms to decrease barriers and increase the inclusion of these individuals.

Automated summary

The purpose of this qualitative study is to explore the experiences and challenges faced by university students living with invisible disabilities. Through the analysis of videotaped medical consultations, three major themes were identified: experiencing overpowering symptoms, facing barriers in medical, social, and academic contexts, and engaging in self-management behaviors. The study concludes that the healthcare system fails to effectively diagnose and support students with invisible disabilities, highlighting the need for stronger links between health providers and universities to promote early disability detection and awareness-raising programs within educational institutions. Further research should focus on strategies promoting effective support mechanisms to decrease barriers and increase inclusion.