The Patient Should Have a Choice: Adults with Sickle Cell Disease Advise Integration of Telemedicine into the Comprehensive Sickle Cell Disease Care Model

Article Health Care Sciences & Services

Accessible Care with High Patient Satisfaction: Telemedicine Use in Sickle Cell Disease

Shu Zhang et al.

Summary: Adults with sickle cell disease (SCD) report high satisfaction and good usability with telemedicine. Telemedicine has the potential to improve access to high-quality care for these patients.

TELEMEDICINE AND E-HEALTH (2023)

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Article Health Care Sciences & Services

Telehealth Usage Among Low-Income Racial and Ethnic Minority Populations During the COVID-19 Pandemic: Retrospective Observational Study

Cynthia Williams et al.

Summary: This study aimed to examine the systemic differences in telehealth usage among people who live at or below 200% of the federal poverty level. The results showed that age, gender, race, education, employment status, and income factors impact telehealth usage. The study found that Asian and Hispanic patients were more likely to use telehealth, while non-Hispanic Black patients continue to face telehealth inequity. Rating: 9 out of 10.

JOURNAL OF MEDICAL INTERNET RESEARCH (2023)

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Article Hematology

Age-related differences in risks and outcomes of 30-day readmission in adults with sickle cell disease

Ming Chen et al.

Summary: This study examined the rates, risk factors, and healthcare resource utilization associated with 30-day readmission in adults with sickle cell disease (SCD). The results showed that SCD complications, younger adults, and those with end-stage renal disease (ESRD) had the highest risk of readmission. Age-specific interventions targeting individuals with SCD are needed to prevent readmissions.

ANNALS OF HEMATOLOGY (2023)

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Article Health Care Sciences & Services

Caregiver experiences with accessing sickle cell care and the use of telemedicine

Seethal A. Jacob et al.

Summary: This study aims to understand the barriers to care and perceptions of telemedicine among caregivers of pediatric SCD patients in the Midwest. The study reveals common burdens faced by caregivers, barriers and facilitators of SCD care, and caregiver perceptions of the usefulness of telemedicine for SCD care.

BMC HEALTH SERVICES RESEARCH (2022)

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Article Health Care Sciences & Services

Telehealth Use Before and During the COVID-19 Pandemic Among Children with Sickle Cell Anemia

Sarah L. Reeves et al.

Summary: Sickle cell anemia predominantly affects minority populations in the US, and lack of access to care leads to poor outcomes and quality of care for children and adolescents with SCA. The use of telehealth has expanded during the COVID-19 pandemic, but its adoption among this population is unknown.

TELEMEDICINE AND E-HEALTH (2022)

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Article Hematology

The Montreal cognitive assessment as a cognitive screening tool in sickle cell disease: Associations with clinically significant cognitive domains

Macy L. Early et al.

Summary: Adults with sickle cell disease (SCD) are at risk for cognitive impairment, and the Montreal Cognitive Assessment (MoCA) shows promise as a screening test for cognitive impairment in this population.

BRITISH JOURNAL OF HAEMATOLOGY (2022)

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Article Oncology

Telemedicine in sickle cell disease: Patient, parent, and provider perspectives

Barbara Speller-Brown et al.

Summary: This study examined the perspectives and satisfaction of patients with sickle cell disease (SCD), caregivers, and healthcare providers (HCP) regarding telemedicine. The results showed high satisfaction among caregivers, patients, and HCP in the delivery of clinical services via telemedicine for SCD. Therefore, telemedicine may be a viable option for this population and may help overcome the barriers they often face in accessing care.

PEDIATRIC BLOOD & CANCER (2022)

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Article Health Care Sciences & Services

A feasibility study of telemedicine for paediatric sickle cell patients living in a rural medically underserved area

Seethal A. Jacob et al.

Summary: This study evaluated the feasibility of using telemedicine to provide subspecialty paediatric SCD care in rural underserved areas. Initial results indicate that telemedicine has potential applications in SCD care, with high patient satisfaction.

JOURNAL OF TELEMEDICINE AND TELECARE (2021)

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Editorial Material Medicine, General & Internal

In the Clinic Sickle Cell Disease

Lydia H. Pecker et al.

ANNALS OF INTERNAL MEDICINE (2021)

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Article Genetics & Heredity

Social support networks of adults with sickle cell disease

Stacy Desine et al.

Summary: This study examined the support networks of adults with Sickle cell disease (SCD) and found that parents and other important individuals play key roles in providing support. Siblings with SCD were found to be more emotionally supportive than unaffected siblings.

JOURNAL OF GENETIC COUNSELING (2021)

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Article Medicine, General & Internal

Treatment of Acute Pain in Adults With Sickle Cell Disease in an Infusion Center Versus the Emergency Department A Multicenter Prospective Cohort Study

Sophie Lanzkron et al.

Summary: The study conducted in the United States showed that SCD patients treated in ICs had shorter time to treatment, higher pain reassessment rates, and fewer hospital admissions compared to those treated in the ED.

ANNALS OF INTERNAL MEDICINE (2021)

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Article

Telehealth acceptability and opioid prescribing patterns of providers of painful chronic diseases during the COVID-19 pandemic: A survey of sickle cell providers

Martha O. Kenney et al.

Journal of Opioid Management (2021)

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Article Oncology

Impact of telehealth visits on hydroxyurea response in sickle cell anemia

Shaner Sarah et al.

Summary: The study evaluated the impact of telehealth dosing adjustments on access to hydroxyurea for patients with sickle cell anemia living in rural areas, finding that telehealth did not negatively impact laboratory response to HU. Future studies should focus on identifying novel approaches to improve access to hydroxyurea for this patient population.

PEDIATRIC BLOOD & CANCER (2021)

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Article Economics

Indirect Economic Burden of Sickle Cell Disease

David Holdford et al.

Summary: This study aimed to quantify the indirect costs of sickle cell disease in the United States and found that pain events had a significant negative impact on employment status, productivity, and daily lives of adults with the disorder.

VALUE IN HEALTH (2021)

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Article Hematology